Chris and I went back to Boston yesterday based on the concern of her primary last week relative to concerns with a lung X-Ray. It was a bit streange being back in the center as we had not been there since we left in Mid-July, after going daily for 5 weeks.
We met with Dr. Burke who is a pulmonary specialist who we had met with prior to the treatment. Chris had another chest X-Ray (she may be radioactive soon) and we went through the comaprisons with Dr. Burke. I was prepared for some bad news, that is how you start getting in this situation, and was afraid we might see worsening in the lungs. However, that was not the case. He said things looked "impressive". Of course we never now how they use these adjectives as we were confused about the word "unremarkable" a few months ago. Bottom line, he said things were progressing well, that she had increased lung capacity since June, and that he saw no troubling issues.
She also met quickly with the heart specialist and he indicated he felt very comfortable.
All in all a good report and encouraging. We also attented the weekly Amyloidosis Support Group and had some good conversations with new (deer in the headlights) and very experienced (multiple stem cell transplants and oral chemo) patients. We always learn a great deal from others and now feel that we can help others based on the progress Chris has made.
I am currently in Zurih with limited internet access, so will keep this short for today. Chris' Mom is at home with her. She also heard from a frind from High School today - which really made her happy. Thanks to all of you reaching out.
More updates to come based on test results!!
Tuesday, September 9, 2008
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