Just waiting

As we get closer to the big 3 day evaluation back in Boston, it is becoming more difficult to wait, at least for me. Chris and I want to know what direction things are going and we will not know for sure until we get a final analysis the end of the week of December 8th. I am sure the week before will be one of much anxiety.

Chris is generally continuing to do well. She stays active, is very alert, and usuallykeeps a positive attitude. Yet, she has yet to gain any significant weight, which has been an ongoing issue for months. Despite a great deal of trying hard to eat high calorie foods, she is still only at 105 pounds. This week will be 5 months since her stem cell transplant, and yet in all that time, she has gained little weight. Some of this may be due to her long walks everyday, but we will see what the doctors say when we meet with them.

Chris actually went to the hair salon last week with her mother. While she was there, she had the back of her next cleaned up a small bit. The minor act of sitting in a salon chair seemed to have pleased Chris. She was happy to brag that "she got her hair done". In reality, it has really started to come back well. It is still very short, but at this point you cannot see her scalp anymore. That said, she continues to run into old acquaintances and many of them don't recognize her. She is very thin and she wears a scarf on her head, so she gets strange looks from people and she needs to say "Hi, yes, it's me".


So we watch the calendar inch forward. As we get closer, each day seems to take longer.

In the meantime, Chris is still getting cards of encouragement and an incredible amount of support from friends, friends of friends, distant family members, etc. Thanks to all of you for that.