Support Group

Today Chris and I head back to the Boston Medical Center to attend out first support group meeting. These are different than the weekly meetings held in the center, but instead are larger meetings, almost conferences, with guest speakers, updates on clinical programs, etc. We have no idea what to expect, but it is important that we attend. I think all diseases have some sort of Advocacy or lobbying organization, and annual conferences, etc. This one is so rare that I believe the organizing body is very small. We'll know more when we get there.

Chris continues making forward progress, with some concerns. In the last few days she has really picked up the walking, going over 5 miles over two sessions. She comes back exhausted, but without question, she is reconditioning herself. It will be along time before she can get back on the tennis court, but I am sure it will be possible if she keeps her personal determination in place. She also has been driving by herself, running errands, etc. It seems so easy, but it really has been a major step for her. For almost 4 months, she has done almost everything with someone: her sister, her amazing friends, her parents, or myself. She is still very reluctant, to be exposed to a germ infected world, and has to wipe down everything prior to touching it, but clearly her ability and willingness to go it alone is a major milestone. Hooray!!!

I was in San Fransisco for a few days this week while Chris held down the house with no issues. We've come a long way from me having to sleep in that chair in the hospital many nights in a row. As I said in the last post, her voice, her stature, her demeanor have all improved. In fact, just like a newly seeded lawn, there is clear evidence of hair growth. It is thin and very short, but the evidence is clear - the hair is coming back.

Just another reminder/request. September 28th, next weekend, is Chris' 100 days of her new life. She has been through a life threatening period, that has taken an incredible bite out of her. Yet she has come through this very well so far. A note of congratulations from you would be just incredible. I have so many friends at work from around the world (Sydney, Singapore, France, Spain, UK, etc.) who have asked about her, her old high school friends from Belgium, friends of both of our parents, friends from her home town, friends here in Mass., it just is amazing. If I could ask you to send just a congratulations card from you, your spouses, your kids away at school, from every and anyone who is aware of this incredible battle she is fighting, it would give her a jolt of strength she is going to need to get to December 8th (the next diagnosis date). If you have never met her, but have been praying/thinking/watching/wondering. then it would be even greater that you could spend the few minutes to send a card. She has no idea (it is unfathomable even to me) how much love has her been sent her way.

Chris Wright
20 Rolling Meadow Drive
Holliston, MA 01746 USA

Someday I will figure out how to thank everyone, but for now I hope you have a piece of knowledge in your heart that you all, everyone of you, have had a hand in her success.
THANK YOU!!!